Tag Archives: patient involvement

Responsible Research and Innovation (RRI)

Patients and researchers towards a new dialogue

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How can patients take part in the research that directly concern them? How should they start to first interact with researchers? What incentives exist to facilitate the dialogue between researchers and patients? This article shares lessons learned during our workshop at ESOF conference in Toulouse collecting best practices from various European countries. Read more [...]
Responsible Research and Innovation (RRI)

How ’Crowdsourcing’ involves experts and patients to define research missions: Broken Bone, anyone?

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What if patients and clinical experts could spark and define the direction of multidisciplinary science projects without knowing the scientific literature? The Ludwig Boltzmann Gesellschaft (LBG) — a Austrian research organisation located in Vienna — is currently experimenting with Open Innovation in Science to systematically steer missions for their future research groups. Open Innovation in Science has been a vital part of innovative R&D units in large companies, however the science side of things are just starting to develop. LBG is currently at the forefront of this development. Read more [...]

Responsible Research and Innovation (RRI)

How to involve patients in health research?

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Patients are the end users of health research; however, they are still rarely implicated in health research. In the 80’s HIV patients have revolted against this position and have invited themselves to scientific conferences and they have contributed to a major change in patient involvement in HIV research. How have other fields of biomedical research, like rare disease research or cancer research, been inspired by this unique experience? Read more [...]