Tag Archives: patient involvement

How ’Crowdsourcing’ involves experts and patients to define research missions: Broken Bone, anyone?

What if patients and clinical experts could spark and define the direction of multidisciplinary science projects without knowing the scientific literature? The Ludwig Boltzmann Gesellschaft (LBG) — a Austrian research organisation located in Vienna Read more [...]

How to involve patients in health research?

Patients are the end users of health research; however, they are still rarely implicated in health research. In the 80’s HIV patients have revolted against this position and have invited themselves to scientific conferences and they have contributed to a major change in patient involvement in HIV -research. How have other fields of biomedical research, like rare disease research or cancer research, been inspired by this unique experience? Read more [...]