European science conversations
by the community, for the community
Patients are the end users of health research; however, they are still rarely implicated in health research. In the 80’s HIV patients have revolted against this position and have invited themselves to scientific conferences and they have contributed to a major change in patient involvement in HIV research. How have other fields of biomedical research, like rare disease research or cancer research, been inspired by this unique experience? Read more [...]
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Experts will discuss the latest research on healthy populations at the forthcoming EuroScience Open Forum event to be held in July 2016 in Manchester. The trouble is, until recently, often people who may be impacted by health research did not have a say in it. Several session organisers share their views on the new avenues that are explored to improve the link between health research and citizens. Read more [...]
The Snowden fallout it far from being over. One of its consequences is the European Parliament’s text for upcoming Data Protection legislation. The draft proposal has resulted in some of the largest, most prestigious, non-commercial research organisations in Europe being up in arms. They warn that the EU is set to strangle health-saving research. In this feature article, EuroScientist investigates what could be the possible consequences, should the legislation does not make suitable exception to allow research of potential future societal value and privacy at all costs becomes the new rule. Read more [...]
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